Melissa Grace is 14 years old and has a rare genetic condition called Angelman syndrome (AS). AS is a complex genetic disorder which affects every aspect of her life.
She has delayed development, and intellectual disabilities. She is 14 years old but still needs help with eating and toileting and most of the everyday tasks most people take for granted. She also needs 24 hour care and will do so for the rest of her life. She has problems with movement and balance and also has epileptic seizures.
Melissa has a very poor sleep pattern and can sometimes have as little as 3 hours sleep each night. The most frustrating part for Melissa is that she cannot speak, and finds her lack of communication very difficult to cope with sometimes.